Monday, September 30, 2013

Not out of the woods yet

I wish I could say my lack of posting has been due to us having had a super fun, exciting week. In reality, last week was kind of one I’d like to leave behind.

Last weekend, we noticed that Reed’s incision had drainage coming out of it. It wasn’t a large amount, but enough to be worrisome. He also started sleeping TERRIBLY. We had one night where he was up over two hours past his bedtime, and when he finally went to bed, he woke up every two hours. Tuesday morning I called the nurse line at ACH and left a message telling them what was going on. They called me back and asked some questions, and since he wasn’t running fever, and I didn’t know if it was red or swollen, she said just to watch it and call back if it got worse.

Well, that evening I got him home, and he was so cranky, and so just not himself. I gave him a bath and when I got him out, I saw that there was more drainage, it was red looking, and it was a little puffy, though I wouldn’t say swollen. I went ahead and called the on call ENT doctor at ACH. He listened to me describe the issues. When he had his surgery, the infection he had wasn’t compatible with the antibiotic he was on. Because at his follow up, he didn’t show any signs of the infections still remaining, we never did start him on another antibiotic. I wondered if the infection had just come back.

The on call doctor told me that a lot of time when the drainage starts like that, it means they didn’t get all of the cyst. He said that they are just incredibly tricky, and can get wrapped around the hyoid bone, and sometimes they just can’t get it all. He told me that we needed to go ahead and come down to have him checked out.

I called the office Wednesday morning and heard from a nurse around 11:00. She took all the information and said she needed to talk to a doctor. I hadn’t heard from them at 3:45 so I went ahead and called our pediatrician and asked them about starting an antibiotic. Well, after I called, ACH called back and told us to bring him down on Friday. THEN, our pediatrician called us back and the nurse took all the info, and when she called back she said he didn’t want to start meds, and normally didn’t for a sinus infection until a list of things happened. She said something about drainage and managing it and I told her I was more concerned about the drainage from his incision. She had misunderstood me. So she talked to the doctor again and then called us back and said they’d call in an antibiotic compatible with the bacteria he’d had at surgery, and told us to come in on Thursday. I was thankful to start meds b/c Wednesday evening Reed was just inconsolable. He didn’t feel well and he was just miserable. This was pretty heartbreaking because for a couple of weeks he had felt SO good and we really thought we’d turned a corner.

He looked Reed over on Thursday, mostly to make sure the issue wasn’t severe enough to send us to the ER at ACH on Thursday. He said many things could have caused the drainage and he didn’t know what it was and that they could help us better at ACH. He also said in his years of practice (30+), in all the cases he has sent to LR to have operations, none had ever come back with complications before Reed. Go figure right?! I would say that with all the complications he’s had with this thing, I truly wouldn’t be surprised if he ends up having to have another surgery.

Because of this, Zach went ahead and took him on Friday and I stayed back. They didn’t have him in the system as having an appointment, but they got it all worked out and got him called back. They came in and looked at him and said they needed to drain it again and get some cultures. When Zach texted me this, I pretty much fell apart. When he’d had it drained the first time, it was absolutely awful. It was awful for Reed and awful for us and I felt so terrible that I wasn’t there for Reed and to help Zach. We truly didn’t think they’d do anything like that or I would've been there in a heartbeat! He called me when it was over and said Reed had done well and that it wasn’t as bad as the first time, thankfully. They said it’s too early to know if the cyst is completely gone. His doctor believes it’s one of two things: recurrence of the infection or a suture infection, where the suture didn’t dissolve and his body is rejecting it. One side of the incision had closed nicely but the other side hadn’t so the doctor felt a suture infection was very possible. The antibiotic our pediatrician prescribed is the right one for what the infection at time of surgery was, so we are going to finish that out. If the cultures come back this week telling us something different, we’ll change at that point. We now have to return on November 1 for another check up.

Reed is feeling mostly better, but he’s not all the way 100% yet. I’m hopeful this week sees him feeling much better. I was SO thankful to see this big smile Friday evening after the rough day he’d had!

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So, while it’s not terribly serious, we are definitely not out of the woods yet, which is discouraging. (Let me also say I know things could be SO SO SO much worse, and while it’s hard, I’m thankful this battle is one that I KNOW he will be 100% healed, just not when.) This poor kid has a couple weeks where he feels better, and then he quickly turns a corner. I’m praying that soon this will all be a distant memory!

Monday, September 23, 2013

Birthday party!!

We have this really cute little “park” in our downtown and as I was trying to figure out where to have Ava’s birthday party, I came across their website which said they have parties! After doing some research, I decided this was the best place for us to have it.

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How cute is this? It has this old Ferris wheel and the carousel! I was worried all week about the party b/c of the rain forecast. It started raining on Thursday night and into Friday, but as promised, it cleared off around midday! It was the PERFECT evening for an outdoor party. Not too hot, not too cold – just a beautiful evening!

After being so impressed with her planner, I asked Jennifer to design the invite and she did NOT disappoint!

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We invited all of Ava’s classmates and a few of our other friends outside of school! The kids had armbands to ride the rides for an hour and ride they did! Some of them just stayed on the carousel and rode it over and over and some of them ventured the Ferris wheel which is HIGH and when it was going, moved REALLY fast!!!!! We had such a fun night! After the hour of rides were over, we had cupcakes and we sent the kids on their way with boxes of popcorn as favors! It was such a fun and perfect, low-key party!

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I would do a party here again all over! It was the best party and I’m so glad we got to have fun there! Thanks to all of Ava’s buddies who came and celebrated with us!!!

Friday, September 20, 2013

How Ava Spent her Birthday

 

I think it’s safe to say that Ava had an awesome 5th birthday!!!! She was showered with love, songs, treats and happiness all day long!!!!!

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She got a package in the mail the day before her birthday from her Uncle Stephen and Aunt Leslie. We talked to them on face time while she opened it and they lit a candle and sang happy birthday to her! She loved it!

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We sent Ava off to bed because we knew we had some work to do to get ready for her birthday morning!

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Zach had a football game he had to be at last night, so we knew he wouldn’t be home to do any birthday celebrations. Instead, we decided to do our celebrating in the morning! The night before, after she went to bed, we blew up some balloons and put up some small decorations. Her gift was in a little bigger box than I expected and I didn’t have enough paper so we made do with a blanket! Whatever works, right?

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We woke up and got ready before she woke up and I popped some cinnamon rolls in the oven. She woke up and saw her balloons. She was a little slow getting started but she she saw her big gift from us sitting on the kitchen table, she kicked it into high gear! While we waited for the cinnamon rolls to cool, we went ahead and let her open her gifts. (Please note that in the background you can hear Reed repeating everything Ava says!)

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We then sang Happy Birthday and let her blow out candles! I have to share the way Reed says happy birthday because it really is too cute for words!

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We took a couple five year old photos and then headed to school.

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As we walked through the halls, Ava was wished happy birthday by several people. She was greeted by her teacher with a big happy birthday and a big hug! 

I returned to her class at snack time with cookies for her and her classmates! I LOVED what they sang in addition to regular old happy birthday!

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All the kids loved the cookies! One little boy said “Ava’s mom, those are the best cookies ever. Will you bring them for my birthday?!” Hilarious.

I had promised Ava I would eat lunch for her on her birthday and on their birthday, they are allowed to have food brought in so I asked her what she wanted and she said a happy meal. So that’s what momma took. It was funny – I was there like 25 minutes and I heard “Ava’s mom” like 100 times. Preschoolers are FUNNY!

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After school, I picked them up and when we got home, Ava had another surprise waiting for her – Aunt Stephanie! My sister was here today and came and spent the evening with us. I went and picked up Ava’s choice for dinner (Mexican!) and we ate at home and then we headed to watch Daddy’s kids perform!

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After we got home and she and I were laying in her bad, I told her I hoped she’d had a special day. She said “I did. You’re the best mommy ever!” Cue tears! I was glad we could make today special for her. She’s a special kid and she definitely enjoyed having the spotlight on her today! ;) Later tonight is her birthday party with her friends and she is excited! I think it will be super cute and can’t wait to share it with you!!!! Then we have one more celebration next weekend with Zach’s family. We’re having a big birthday shebang since there are 5 birthdays to celebrate! I don’t think Ava minds though! Thanks to all for the birthday wishes for her. She had a great day and we loved getting to celebrate our sweet girl!

Thursday, September 19, 2013

Happy 5th Birthday Ava!!!

 

Happy 5th Birthday, Ava!!!!!!!

 

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Oh, my Ava. Five years old. I feel like I’ve blinked and the past five years have disappeared. Each age brings something new and exciting and you are blossoming into such a lovely little girl. And that’s just it. You’re a girl. Not a baby, not a toddler, but a girl. And I think that’s why I’m having such a hard time with you turning 5 – it just seems like this age marks the end of your baby and toddler days.

I ask you all the time if you can stop growing and you look at me and put your hands on your hips and say “Nooooo! I can’t stop growing.” Your looks have also really changed this last year – you LOOK older. You’re growing up so, so fast, and I love watching you grow, but oh how I mourn the passing of your babyhood.

You’ve gotten really independent this last year. If we can’t do something for you immediately, you’ve started figuring out a way to do it yourself. For example, if we can’t get you a drink right away, you’ll pull your stool to the cabinets, get down a cup, and get your own water.

You love to play with girlie things, like Barbies, My Little Ponies, Polly Pockets, etc. You also have great creativity and love to draw and make arts and crafts. You’ve really thrived in gymnastics and you have a deep love for music and dancing. You listen to music so much of the time and you like to sing along loudly and without knowing the words, which is sometimes the funniest thing ever! You also really want to be a “cheer girl” and you talk about it and practice cheer moves all the time!

I’m amazed at how smart you are and how precocious you are! There are times you leave your Daddy and I just looking at each other, shaking our heads and chuckling because of something you have said or done. You’re also very stubborn. It makes it SO SO hard to parent you sometimes because traditional punishment just doesn’t work, but I know that one day this will be something you can use to make your mark. I look forward to seeing that day.

My sweet (not so) baby Ava. You were my first born baby, the one who made me a mama, and I love you more than you know. I simply cannot tell you what a blessing you are to me and your daddy and your brother, and our whole family. You have such a special spirit and I thank the Lord each day that you are mine. You are sassy, sweet, imaginative, feisty, giggly, and one of the biggest joys in my life! Stay spunky, sweet girl! Mommy loves you!

Monday, September 16, 2013

Weekend getaway

Whyyyyyyyyyyyyyy does it feel like weekends are over before they begin?!???? I feel like it’s Friday afternoon, I blink, and then it’s Monday again.

We had a fun weekend. Friday afternoon we headed to Oklahoma City. For my birthday, Zach got me tickets to see Wicked and our tickets were for this weekend. We left Friday afternoon. Reed was a bit of a whiner in the car while Ava’s move was on. I tried my hardest to keep him entertained and happy.

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We got to my parents house and they had dinner waiting. The kids were way too excited and busy to eat. They played and played and when it was time for baths, they wanted my mom to do it instead of me or Zach. Since she was little, any time my mom has bathed Ava, she’s always made her hair stand up and so Ava asks for it every time.

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She also wanted her to do it to Reed, too!

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Saturday was the day of the big show! I must say, I’d seen Wicked before. This was my 4th time. I hadn’t seen it in 7 years and it was so exciting to see it again, closer than I’ve ever sat before. And I loved it every bit as much as I loved it the very first time I saw it. I was SO surprised when Zach gave me these tickets and we had such a fun afternoon together.

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We went and had lunch downtown before the show. We went to the Bricktown Brewery and just enjoyed a meal without hands grabbing at us or needing to attend to the whim of someone else immediately! I’m a lucky lady to be married to this guy! He’s a good, good man!

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That night as I was turning out the light where Ava was sleeping, I snapped this picture. It hit me that this little girl is turning 5 this week. I have NO idea where the last five years have gone. I feel like I blinked and it’s here.

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Sunday morning we went and picked up some donuts. The kids were happy and I was excited to walk in and see them have samples out of a red velvet donut! I tried it and it was SO good so I grabbed one to take home! YUM!

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We came home from OKC via Tulsa to meet and have lunch with Zach’s parents, grandma, sister and boyfriend. We stopped to see his sister’s new house and then we met up with everyone else at Chuy’s! We had a delicious lunch and Ava was excited to see a sucker that her Papa had for her. She ate some of it on the way home and thought it was funny to see her blue mouth!

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It was a wonderful weekend and just what I needed to take my mind off all this stuff going on. We have a super exciting week since our little lady is turning 5! She is having a birthday party Friday and we are all pumped!  Here’s to a quiet week and lots of fun celebrating our sweet girl!

The Edwards Family

The Edwards Family

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